LOL Congress: Day 94

This is the way the world ends. This is the way the world ends.
Not with a bang, but with…Congress.

This partial T.S. Eliot excerpt (and fav Cards Against Humanity card) comes to mind after today’s email from my congressman’s assistant.

…it’s really tough to do legislation on this issue.  However, are you aware that there has been funding through SAMHSA for programming to try and reduce the stigma of mental health?  Perhaps you want to look into what that funding has been able to do and let me know whether you think that’s effective or whether possible changes might be made?

More importantly, are you aware of the initiative Makeitok.org? They are going to hold some pretty big events this fall-there are already ads up for them.

Best,
Liz

Here’s what I read:

It took me 94 days to make one phone call to NAMI and I only did that because you keep bugging me. Why don’t you do more research to keep yourself busy so I can avoid telling you ‘no’ since I want you to vote for my boss next time. 

For eff’ sake. I just want to replace the phrase MENTAL DEFECTIVES with a more humane word. I’m not trying to change what the law enacts. I just want to change a word. Why is this hard??

Well, since my very own congressman is a dead end, I’m really glad my friend’s mom works for Congressman C.  My friend’s sister has Bipolar Disorder and no doubt it raised her mom’s hackles at the idea of the federal law calling her kid mentally defective.

While, it may have been altruistic to assume that one of 18 my elected officials would have bitten at my shiny March 25 letter, I had to try.

Next time I’ll save myself the 94 days and postage.

Bonjour Ben

A colleague lent to me her brother’s Fitbit.  For the first two weeks, it didn’t register the change from him to me. Every morning, upon it’s first movement of the day, it would greet me with Bonjour Ben.

This little jumpdrive shaped number tracks steps, miles, and stairs.

I walked over 16,000 steps on Saturday.  I only went for a walk in the evening to make sure I rolled over that 15,999.

I’m hooked.

I ran Sunday, in part mostly because I wanted to see if I could top 16,000 steps.  Sadly, Bonjour Ben is old and it’s display stops working without notice or obvious cause. Even though I’m sure I logged 6+ miles yesterday between my morning run and evening walk, I’ll have to wait until the new FitBit arrives and I can tackle that same route again.

Bonjour Ben was returned to its rightful owner and I bought the next generation of FitBit this morning with my Amazon Visa reward points. I’m a little nervous about this being a ‘shiny object’ so I was glad to use points to pay the $90.

Now I wonder what it would take to get to 20,000 steps…

Foreshadowing

In high school, I randomly went on a trip to Europe. I say randomly because I was 16 and didn’t have a sense of self much less a sense of adventure.  My dad was the son of a rear admiral whose career took his family all over the world. As an international commercial pilot himself, he taught me to imagine beyond the invisible boundaries of my young life.  He’d bring back coins stamped with strange people and symbols. I deposited the coins in a tiny clay pot I made in school, but not before I’d locate it’s point of origin in my Rand McNally Atlas.

I was ‘selected’ to go on this student ambassador trip to Europe. I’m pretty sure that ‘selection’ had something to do with research on my parents’ tax return, but it didn’t stop my dad from being excited about the opportunity for me to travel and he never really got excited over much.  I’m not sure why I decided to go, but it was probably more to make my dad happy than anything else.

Looking back, this trip was perfect for young deviants. We were left to our own devices with only Chuck, Carol, and Vern leading 30 some teenagers through Great Britain and Ireland.  Chuck was creepy, Carol could have cared less, and Vern…I don’t actually remember anything about Vern. Anyway, the sex, drugs and rock-and-roll that could have happened either didn’t or I was too naive to notice.

A few days in, Ali and I connected over our shared love of peaches. One late night talking on the ferry from London to Wales and we were inseparable for the rest of the trip. There were some cool people on that trip and looking back, I wish I would have taken the time to know. Like Leah.  Today, Leah and I are Facebook ‘friends’.  ‘Friends’ like we talked about commiserating over beer about her mom’s brain cancer and my mom’s mental illness and her brother-in-law’s terminal gastrointestinal cancer and my BFF’s melanoma, but we’ve never actually made it happen.

Last week, her brother-in-law died. He lived 2.5 years longer than the experts told him he would. And during that time, he shared with any group that asked a powerful message about living. He was scheduled to speak at a fundraising event for me in the fall – if he made it that long. As a result of that commitment-with-an-asterisk, I watched his CaringBridge page closely.

I slipped into a funk when I learned he entered hospice just days before the cancer overtook him and I cried the day he died. I knew I wasn’t crying about his death, but it took a moment to find the root of the upset.  The average life expectancy for someone withe metastatic melanoma is 16 months.  This felt like a foreshadow of what it will be like for S when the cancer overtakes her.

Alley Trollers

It took five hours, but our garage is cleared out.

This isn’t the two-car, well-lit, garage-door-opener garage of my childhood.  Nope. This is the 1939 version complete with a dirt floor, antique cobwebs, fauna, and a padlock.

In total, we had three sets of patio furniture.  The one we use, the one left with the house, and the set our neighbors were fortunate enough to offer to us the morning of my brother’s welcome home BBQ.

TB’s armoire had been holding the hand-me-down hammock while several old storm windows, 2×12’s, and drywall fought with the wheelbarrow and the lawnmower for space.

We called friends – particularly a friend building a cabin up north with remnants, offered up the unused goods to our neighbors, and then left the rest for the alley trollers.

In our fair metropolis, old beater pick up trucks wander up and down the city’s system of alleyways searching for the treasures of one man’s trash.  Within two days, 90% was taken. Within a week, everything down to the  ‘FREE’ sign had found a new home.

I’m proud that the guts of the garage will be recycled by some crafty alley trollers.  It was also a nice reminder to never leave the garage open and unattended.

Hail Mary

It came too soon.

Well, all of it came too soon, but more specifically S shouldn’t be on the last ditch drug yet.  It was barely a year ago, on May 8, that the dermatologist told her the mole on her left shoulder was likely Stage 2 cancer.  Stage 3 happened on May 30.  I can’t even remember when Stage 4 officially joined the party.  July, I think?  Regardless, it wasn’t that long ago.

Zelboraf is the brand name of vemurafenib.  It’s a $14,000-a-month, eight-pill-a-day cancer poison. And as hardly a noun escapes a nickname in my vocabulary, it’s better known as ‘Zebra’ the brand name of ‘Venom.’  And while Venom is sadly apropos, I opted for the cute safari animal over the toxin.

Zebra is all-powerful and eradicates cancer from the body. But it’s also the last ditch drug. It can only be taken once and generally only works for an average of six months before it’s overcome.

Someday, I hope Zebra is like aspirin to a headache. Doctors will say, “Take two Zebras and call me in the morning.”  Someday.  I hope. For now, it is a Hail Mary.

It’s Coming

The temperature is starting to drop and the breeze has more of an intention now.  I cannot see the cover of darkness that looms on the other side of the horizon, but it’s coming.  The birds are silent and I have developed a sixth sense about these things.

I once swam amongst a rainbow of wildlife on the Great Barrier Reef.  I didn’t notice when fish evacuated and there wasn’t even time to be frightened as the two-foot reef shark sauntered in as quickly as he sauntered out of sight.

The ignorance of impending disaster is much preferred to constantly bracing for it.  I wish I was blissfully unaware, like the time before the shark.

However, I have found the answer to the question of whether it is easier to lose someone suddenly or to watch them die. While the end has not come for my mom or S I will always be grateful that I had the time.

LOL Congress: Day 47

Today, a staff member for the state House of Representatives popped into my office (she’s also on the Board of Directors at work) and I asked to bend her ear about LOL Congress.

She suggested reaching out to my state senator to ask him to encourage my congressman to do something about ‘mental defectives.’

By the end of the conversation, she was on her way back to the Capitol to deliver the LOL Congress letter to a friend of hers in mental health in Representative W‘s district.

T minus fifteen days before Round Two of LOL Congress.  Learning that it’s all about who you know when it comes to getting things done that are outside of your control has been vital to my professional success. My guess is that it will be vital to the success of this campaign as well.

So Round Two will be all about the six degrees of separation and the twelve people I know who can help me reach the people who can get this done.

Wardrobe Malfunction

It’s been 34 days since the doctor put the kibosh on CrossFit because of the shoulder impingement (which still sounds like a big sally injury.)  Now, I know the pony keg that is my abdomen didn’t happen in those 34 days. No, I’ve merely become acutely aware of it in the last month.

There’s a wedding in two weeks for one of TB’s friends. I have a closet full of dresses that have been my go-to frocks for such occasions for the better part of a decade.  One favorite is a classic black,  v-neck that hits just above the knee.  The other fav is a silk magenta one-shoulder number. Both are forgiving and flattering and I can’t wear either right now.

That’s untrue. I shouldn’t wear either one. They have forgiven and flattered as much as their carefully stitched seams will allow. They tried to warn me with their gaping zippers, but I ignored their pleas and fought those zippers only to be mortified by my reflection.

What the HELL.

Thankfully, one of the second-string dresses will work. But more importantly, this has been a wake up call.

I hate shopping but if I don’t reign in this barrel chest and these voluptuous thighs, I’ll have to replace my entire wardrobe.   Did I mention that I loathe shopping??

Motivation comes in many individualized forms. For some people it’s health, for others it’s self-esteem. For this girl, it’s the mall.

I’ll gladly lose 10-15 lbs (too chicken to step on the scale) to avoid the mall.

New Hampshire

YES!!

New Hampshire. UHH.

NH

It took one year and fourteen days to see a license plate for every great state in this union in my metropolis.

Even if another candidate is selected to fill the position for which I interviewed yesterday, it may have been worth it just to finish my ‘thing’ with the sight of a New Hampshire license plate.

Humidity’s #1 Fan

Rasher, Mel, and I went to Arizona for a long weekend. Arizona? Not for me. But I’d go anywhere with these two.

besties

I love these two

we did a lot of this...

we did a lot of this…

...and this

…and this

after awhile these just looked like middle fingers

and after awhile these just looked like middle fingers

bliss in the backyard

bliss found in Rasher’s dad’s backyard