Category Archives: mental illness

SoloCal

I have loved every second of this trip. From the solitude and art classes to the sound of an uninhibited ocean and an electric car on an open road, I was free (aside from the obligatory call home) for six days in Southern California.

Oddly, the region in which I was conceived is a place of homecoming for me. The genes of two mentally ill people — one diagnosed, one susceptible to cult religion — somehow came together and the crazy DNA canceled itself out. Thankfully.

I’m at the airport and I don’t want to leave. Not a dread, but neither an excitement to get home. Here I am free. Home I am not. In my life I’ve never been free from crushing responsibilities of other peoples’ mental illness, pedophilia, torment, violence, needs.

This week has left me thirsty for freedom. I will take this trip again before I am choking and gasping for it.

A biological arrogance

I thought about my flight going down today. I was okay with it. My kids and TB would be taken care of financially. The kids would suffer, but people would pick up the slack for TB.

New to us, Lionheart has five imaginary friends and I’m suddenly feeling the gravity of knowingly bringing two humans who are genetically predisposed to severe and persistent mental illness into the world.

I could have let the bloodline die with me. But instead, I was irresponsible with our first child and just arrogant with the second.

I could have let the genes I carry and those that have manifested into anxiety in me suffocate with my last breath.

And now I find myself hyperaware of anything neurodivergent. And it’s awful.

PTSDawhaaaa?

As if it were a few weeks ago, I remember sitting in the office of my brother’s attorney listening to his presentation on the horrors seen by soldiers in Afghanistan. Mouth agape, I watched the accompanying slideshow containing images not one person in humankind should ever see. When I looked at my brother in disbelief, he gave a slight nod and a shrug.  I knew it was bad. I had no idea it was that awful.

He arrived home from two tours and four years in the United States Marine Corps with baggage that included his duffel and a mental illness.

PTSD is something soldiers contract after time spent collecting blown off body parts, after experiencing ‘pink mist’, or after shooting a dog that came too close because it might be unwittingly harboring a bomb.  PTSD is what happens when my brother watched the guy beside him shot in the head by a sniper. It’s what can occur naturally when 6 of 40 soldiers brothers, don’t come home.

So imagine the surprise when the therapist said, “I believe you to have PTSD.”

PTSD?  No way. I’ve never been to war. I’ve never been raped or beaten or seen another person die.  I’ve never experience trauma.

Funny how we see ourselves though. According to her, my life has been saturated with trauma.

It took a little convincing, but the more I paid attention, the more I started to understand.  One of the lifetime mantras that kept me functioning was: Someone else had it worse. Someone else was raped by their stepfather, not just exploited or manipulated into sexual acts. Someone else’s mother left marks when she hit, not just psychological scars.  Someone else didn’t get to say goodbye to their best friend, instead of having the opportunity to make the end count. Someone else’s brother succeeded in his suicide attempt, rather than watching him survive and make a 180-degree change. Someone else’s brother died in Afghanistan, instead of coming home broken. Someone else lost the whole of their mother to mental illness, and I’ve only lost most. Someone else got PTSD from their trauma, where I just have a hard time sometimes.

Someone else had it worse was a mantra of survival. It was buoyant when I might have otherwise sunk had I known how much better it should have been.

I had it bad.  I told my mom that my dad sexually abused me and that was the straw beam that broke the camel’s back.  She was hospitalized in the psych ward for six weeks.  I learned a detrimental lesson at the age of six – if you tell your mom, she will have a mental breakdown and you will be left. Alone. With him.

I had it bad. I used to provoke my mom until she would hit me so I could physically feel what I felt inside.

I have it bad. My best friend is dying.

I have it bad. My mom is so sick and has been for so long.

Mantra be damned. I have it bad.

Unearthing

On the Thursday night of the glorious week of vacation I took earlier this month, my brother texted me to meet him at the hospital to help him admit our mother.  She was talking very openly about slitting her wrists. She’s never talked about killing herself before.

So, after a wonderful week focused on rest and wellness, the landslide that is mental illness once again enveloped light and happiness and left me covered in muck and debris.

Debris in the form of things that children should never hear: “I want to cut my wrists,” and things children should never learn: “I don’t know why [my kids] love me. I don’t know if I love them. Is that weird?”

Oddly enough, it’s not the debris that poses the biggest and most devastating problems.  The real fallout is the guilt that coats everything like mud.  And for anyone who has used a purifying mask or worked with clay knows, mud will adhere like a second skin and it will suck you dry.

For the past week, I have been unearthing myself from the guilt. Guilt that I don’t want to spend time with my mom. Guilt that I don’t do enough to fix her mental health. That my younger brothers are doing much more than I am. That my mom had a horrible childhood, and married the exact type of person she didn’t want to, and that she doesn’t have any friends or hobbies, and that she’s so lonely she wants to die, and so on and so on.  I feel heartsick or guilty about things 95% of which I can do nothing about.

Thanks, Catholicism.

I love my mom. Or at least I love who my mom was. I am loyal to this person who’s mental illness has overcome her. I will be loyal to that person until the end of my life, but I’m not certain I love this person.  How can you love someone from whom you get nothing back?  I’m so desperate for anything from my mom – for any sign of who she used to be, that’s it the greatest thing in the world when I can get her to chuckle like she used to.

Thanks, mental illness.

Thanks to Kent cigarettes as well. You sure shit on my life September 26, 2008. I’m not saying that my mom didn’t choose to smoke 1-3 packs a day – that’s on her. But it is on Kent (and mental illness for that matter) that she’s addicted and she had a stroke.

I feel like I’m in the middle of nowhere, covered in mud, and no one will help us help our mom.

 

It’s Coming

The temperature is starting to drop and the breeze has more of an intention now.  I cannot see the cover of darkness that looms on the other side of the horizon, but it’s coming.  The birds are silent and I have developed a sixth sense about these things.

I once swam amongst a rainbow of wildlife on the Great Barrier Reef.  I didn’t notice when fish evacuated and there wasn’t even time to be frightened as the two-foot reef shark sauntered in as quickly as he sauntered out of sight.

The ignorance of impending disaster is much preferred to constantly bracing for it.  I wish I was blissfully unaware, like the time before the shark.

However, I have found the answer to the question of whether it is easier to lose someone suddenly or to watch them die. While the end has not come for my mom or S I will always be grateful that I had the time.

Lol Congress: Day 33

It’s been a 22-day dry spell, but I’ve heard from another one.

Dear xxxx,

I wanted to write and let you know that the Congressman received your letter, and he wanted me to respond personally.  Thank you pointing out the importance in the way which terms used to describe those who are mentally ill cause stigmas.  As you know, there have been different words used throughout history to describe different groups of people that are insensitive or inappropriate.  Hopefully, over time, all these terms will be removed from legislative statutes.

Best,
Liz

Legislative Assistant
Office of Congressman E

*eye roll*

In replying to this fluffy, stupid, brush-off email, I curtly asked if I should interpret this response on Congressman E’s behalf as disinterest and I’d be better served pursuing other avenues to get this accomplished. Her response:

xxxx,
Regardless of the work that the Congressman decides to do on this issue, I would be exploring as many avenues as possible.  I will be doing some research on the topic and then talking with him about it.  I’ll need a few weeks to do research.  I won’t know if it’s a topic he’ll want to pursue until I talk to him, but I do know that mental health issues are important to him.  Federal legislation takes quite some time to produce, introduce, etc.  For instance, I’ve been working on a bill since December that has yet to be introduced—it’s important to get it right.  I can be back in touch once I have had a chance to do research and talk with the Congressman.
Liz

It will be a pleasant surprise to hear from Congressman E’s office again.  In the interim, May 25 will mark two months allowed for my state and federal representatives to respond. At that time, I will pursue other avenues…whatever those may be.

PS There isn’t a business professional out there who wouldn’t get shit-canned if it took two months to respond to correspondence. *exasperated eye roll*

Lol Congress: Day 11

Eleven days ago, 16 letters were postmarked to 14 elected officials – from my representative to the President – and two local advocates to change the phrase ‘mental defectives’ in US law.

Today, the post office delivered the first two responses.

Representative W said in essence, ‘Dear fill-in-the-blank, thanks for your letter.  Since you’re not in my district, you’re not my problem. But here’s your representative’s address. Have a nice day.

photo 1

The first of the two advocates, Former Representative R, replied on a more personal level (but probably only because he knows who I am via TB, my brother-in-law, and a friend of mine.) ‘I wholeheartedly agree with you, but since I’m not in Congress anymore, I suggest you contact your current congresspeople.

photo 2

Erg. I knew I should have included a list of those I copied to avoid the inevitable ‘you should talk to so-and-so’ responses.

In sixth grade, I wrote to the first President Bush with a recycling initiative. Six months later, with generic response in hand, I learned that only the loud and unrelenting are heard.  I was small and meek at 12 years old.  Some things have changed in the twenty years between receiving a form letter from the White House and today. While still small, meek was a skin I shed in high school.

Fourteen responses to go.  All I need is one bite.

Whaaat?!

“Whaaat?!” was my mom’s reaction to the ER doctor, as if he just told her she was pregnant at 62. On the other hand I don’t know why it was my first reaction to laugh when the freckled doctor, EKG in hand, told her she was having a heart attack. Perhaps it was shock. Or maybe disbelief. I was so certain we were coming in for mental illness under the guise of physical ailments that I never considered that she might actually be physically sick. I had even called ahead to warn the ER of my mom’s mental illness.

I most likely laughed because I found myself unbelievably thankful that Catholic guilt steamrolls any logic in its path.

It’s common knowledge that a call from my mom after 10:00 p.m. is never a sign of mental stability. When I picked up at 11:30 p.m., I immediately regretted it. However, guilt for failing to return her call from the day prior overrode my sensibility.  Sure enough, she told me she was hyperventilating (she clearly was not) and that ‘they’ had broken in and stolen her medication information.  She wanted to go the ER because she thought her blood thinner was causing her shortness of breath and she wanted to learn about her medication. Hardly a reason to go to the emergency room. Hardly a reason for me to redress and drive out into the suburbs in the wee hours of a Saturday morning. But nothing I said convinced her otherwise, so very begrudgingly and fueled only by guilt I drove the 30 minutes to her house, swearing at mental illness every mile.

The surefire way to be seen by a doctor in the emergency room right away is to mention any symptom of a heart attack Or tell triage you’re getting married the next day. Either one seems to expedite the process.

As assumed, they took ‘I’m having shortness of breath’ pretty seriously down there B-Town. I grew up in this particular nondescript suburb and if more years than I care to admit hadn’t already passed, I would be able to name every non-Caucasian kid in my class of 700. Its not nearly as understanding of difference as the metropolis from which it feeds. It is fair to say that my experience with the mental health system over the past 25 years has jaded my expectations of the humanity shown to any person mankind has deemed crazy.  I was especially nervous for the level of compassion for someone with mental illness at a hospital without a psychiatric unit. Funny thing when your expectations are in the toilet you tend to be blow away by even the most basic of courtesies.  I was overwhelmed by the kindness shown to my mom by everyone. She wasn’t treated like a pariah or a child. They were kind and sincere. Not at all what I expected after I had already quietly outed her mental illness diagnosis to the attending nurse.

In the end it wasn’t a heart attack, although I don’t know that hypertrophic cardiomyopathy is any better. Especially since it’s buried deep within my mom’s DNA – and subsequently possibly ours – and is generally only discovered when the afflicted drops dead.  It cannot be cured and only added to the gang of hoodlum ailments cracking their knuckles in line to kill my mom.

My mom has always said, “I’m going to live until I’m 80. I come from good stock,” in response to whatever health issue I was was wailing about (usually smoking.) And time and time again, she survives. Ever the cynic regarding her health, she’s slowly making a believer of me.  And I will gladly eat that crow if she makes it another 17 years, 5 months, and 2 days.

Get Off the Fence Already

For more than a week, I’ve been perched upon a fence teetering between the easy out and jumping into the challenge. The nonsensical part is that I made up my mind to do something a long time ago and have been expending far too much energy waffling atop that fence.

Yesterday I called a donor with a question for work. She turned out to be a lobbyist. After hearing my idea she gently tipped me off of the fence, in the wonderful way only a Midwestern mother can.

Riding a fence is stupid anyway. I have no idea how to get Congress to make a change to a law, but I’m going to find out.

You don’t get to call my mom and the other 46.1 million Americans  ‘mental defectives.’  Watch out 18 U.S.C. § 922 : US Code – Section 922. I’m coming for you.

Lol. Congress.

Mr. Buford noted in his response to my letter that the he learned the term ‘mental defectives from 18 U.S.C. § 922 : US Code – Section 922.  WTF is the term ‘mental defectives’ doing in US law? I emailed one of my college besties and go-to attorney to find out how to change the language.

Me: Hey – how do you change a word in a thing like this: 18 U.S.C. § 922 : US Code – Section 922? What is ‘this’ anyway?
Rasher: The citation below is to a statute (federal statutes – United States Code). Knowing what this is, I am now more curious why you are citing/referring to it??  I’m sure there is good reason.
Me: Well, if you’re Mr. Buford in California who has no concept of mental illness or the language to use when referencing it and you pull this statute as you reference point when talking to the media, you are perpetuating a stigma without even really intending to.
Rasher: Ah, so it’s in the statute.  So…..now what?  I feel some sort of crusade is about to be embarked upon….
Me: Who do I ask to change the language in the statute?
Rasher: Lol. Congress.

Lol. Congress. She just named my first book about my next ‘crusade.’